Our National Launch
Monday, December 5, 2022
9:30 am – 10:00 am EST
NUSU Student Centre
221 College Drive, Foyer
(Free parking on site)
Welcome and RDS Canada Launch
Featuring Dr. Kevin Wamsley, Dr. Mary Pat Sullivan, Dr. Jeffery Coull, Dr. Sebastian Crutch and RDS Members with lived experience. Refreshments are available before and after welcome and lunch.
2:00 pm – 3:00 pm EST
Heart to Head: A discussion on living better, living well with a rarer dementia
Featuring Dr. Mary Pat Sullivan, Dr. Sebastian Crutch and RDS Members with lived experience. Join our kitchen table discussion: A ‘heart to head’ discussion of support strategies to live better, live well with a rarer or young onset dementia.
- Sip & Sonder: Connections with Self, Family, Community and the Natural EnvironmentThank you to all who gathered at the North Bay museum on November 1st and 2nd to explore our installation of stories of connection and living with dementia. The event included welcome and refreshments, open gallery & Imagine and Create Your Own Maps.
- Support Group for Familial Alzheimer’s DiseaseIn partnership with Rare Dementia Support (UK) and Youngtimers (USA), Rare Dementia Support Canada hosted a joint support group to bring together individuals from the US, Canada, and the UK (and beyond) impacted by autosomal dominantly inherited familial Alzheimer's disease (sometimes referred to as ADAD, DIAD or FAD). We are pleased to announce that the 90 minute group support session ran on Sunday, November 19th and included an international group of participants. For more information please email firstname.lastname@example.org.
- Talking Lines creative research update Talking Lines is a research project which combines both visual and verbal modes of communication, taking the concept of the drawn line as a starting point to promote communication and narrative construction. Talking Lines invited 27 people living with or caring for someone with a rare dementia to draw and talk about their experiences; reflecting on deeply challenging situations such as maintaining identity in the face of a diagnosis, the realities of care, and wider social and cultural narratives about dementia. There will be a presentation of this research at the Drawing Room Library, London (UK), which will focus on the drawings and words of 4 participants who took part in the research, including Canadian participation.