Where to Begin – Poetry Installation at Nipissing University

A poetry installation exploring what it is like to live with a rarer dementia was open to the public from December 5, 2022 to January 31, 2023 at Nipissing University. As part of the ESRC/NIHR (UK) funded Rare Dementia Support Impact Study people living with a rarer dementia participated in research poetry facilitated by poets Martha Gould in North Bay and Lawrence Wilson in Rye (UK). The installation features poems from the book There is So Much I Could Say (2022).
Room 101 NUSU Building, 221 College Drive, North Bay, Ontario
- PPA (Primary Progressive Aphasia) Support GroupThis support group is for people living with a diagnosis of PPA along with their main supporter, who may be a family member or friend. The PPA 4 Week Welcome Group helps members build connection, learn and share practical strategies for living better, living well as family or friend supporting someone with a diagnosis of Primary Progressive Aphasia. The Welcome Group is offered as a first stage group where members are then invited to participate in an ongoing monthly PPA support group after these first four weeks. These sessions are happening on Mondays, July 10th, July 17th, July 24th, July 31st from 1 pm - 2:30 pm EST.
- Living with Dementia in the Later StagesThis group aims to provide practical information, education and emotional support for families impacted by a rare or young onset dementia during the late stages of the disease. Sessions will cover a range of topics with practical advice, provide a safe space for participating members to share experiences and include educational information. The sessions will start on September 14, 2023 (12 pm - 2 pm EST) and will run for seven weeks ending on October 26, 2023.
- FTD (Frontotemporal Dementia) Support GroupThis support group is for family or friends/caregivers to someone with a Frontotemporal (FTD) diagnosis. The Welcome Group is offered as a first stage group where members are then invited to participate in an ongoing monthly FTD support group after these first four weeks. These sessions are happening on Mondays, May 29th, June 5th, 12th, 19th from 1 pm - 2:30 pm EST.