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Planning for Care & Support

Mother and daughter looking and smartphone

Planning for care and support is another important consideration. We encourage you to discuss your needs and/or wishes with your family or social support network and set out a flexible plan to ensure resources are in place if or when you might need them. Take an active role in making decisions that are right for you recognizing that some of your plans may change or need updating over time.

Home and Community Care

There are various supports available to help you live independently. Forward with Dementia has an excellent provincial/territorial resource to help you think about everything from transportation services to home supports

Members tell us that coordinating resources can be time consuming and stressful at times. Think about using an advocate, such as a family member or friend, to help you navigate complex community systems and organizations.

More and more people explore how technology might be used to support them at home. There are various options that you might explore including: AGE-WELL and CanAssist.

Hospitalization and Long Term Care

Hospitalization for other physical health problems while living with dementia is not uncommon. Hospitalizations are often unplanned. Being prepared and communicating with the health care team is essential to minimize any risks due to cognitive impairment and ensuring the right supports are in place during and after time in hospital. Social workers, discharge planners and hospital advocates are available to help during this time.

Planning for long term care is sometimes necessary. Exploring your options is important – what type of home or facility, location, and cost are all key considerations for you. Knowing the options will help you if and when this decision becomes relevant for your situation.

End-of-Life Care

Conversations about the end-of-life and choices at this time in our life are more commonplace than they once were. We also encourage this conversation to ensure your decisions are also respected at this time. You may want to have an intimate conversation with a family member, friend or spiritual guide. You may consult resources such as End-of-life care | Alzheimer Society of Canada and End-of-life care –