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Group Support and Education

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Support Groups

We know that coming together in positive and shared spaces to receive informational, social and emotional support works for people affected by rare dementia. We also know that people need different types of supports at different times. Our community offers different types of virtual group spaces where people with a diagnosis, their friends and family and those working with people with a diagnosis may come together for support.

Our support groups run throughout the year and are facilitated by a support worker. We offer rare dementia diagnostic-specific groups as well as Living Better Living Well groups. Please visit our member area for more information.

Practitioner Community

“I have a feeling of community being a part of this group. I don’t know anyone outside of this group that is affected by this type of dementia. It’s nice to be around others.”  

– Anthony, who is living with posterior cortical atrophy

Peer Conversations

Peer conversations are 1-2 sessions to discuss specific topic areas that might be relevant to you. These topics are sometimes raised in support groups, but we may not have the time to fully explore them. Please visit our member area for more information.

Educational Groups

Our educational groups or webinars are larger groups of people affected by a dementia and practitioners who work in the field. The webinars provide specialist advice and information on the different types of dementia. We cover some of the latest research, new service innovations or other initiatives that are addressing rare dementia. Speakers are national and international experts that are pleased to keep you up to date with new learning in the field.  We host a minimum of one webinar per condition per year. Please visit our member area for more information.