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Providing rare dementia support across Canada

Daughter with arm around father smiling

Who we are

RDS Canada provides a free information and support service for people living with, or affected by, a diagnosis of rare dementia. We are a community of people with similar experiences and specialist practitioners. Together, we provide timely and tailored practical, emotional and social support.

We support people affected by:

  • Young onset Alzheimer’s disease
  • Familial Alzheimer’s disease
  • Frontotemporal dementia
  • Familial frontotemporal dementia
  • Progressive primary aphasia
  • Posterior cortical atrophy
  • Lewy body dementia
Virtual meeting

How we can support you

Our support specialists are here to speak with you. Sometimes people just need a bit of information and at other times people may need a listening ear or emotional support by meeting up with others who feel the same.

We also offer information and advice for practitioners who work with people affected by rare dementia in a variety of settings. Working together is important to respond to a range of support needs, whether someone has just been diagnosed or whether they have been living with dementia for some time.

Welcome, Bonjour, Aaniin! Join our community.

If you need information or support and would like to connect with us, you can:

Find information and support that is right for you

If at any time you feel overwhelmed with the information provided in our website, click here for supportive tools.

News & Events

Talking Lines – Creative Research Project

Talking Lines invited people affected by rare dementia to draw and talk about their experiences.

International Gathering for Familial Alzheimer’s Disease Support 

RDS Canada hosted a joint support group for people impacted by familial Alzheimer’s disease.

Dr. Mary Pat Sullivan Receives NU Chancellor’s Award for Research Excellence 

Dr. Mary Pat Sullivan was awarded the Nipissing University Chancellor’s Award for Research Excellence.

RDS Canada and Against the Grain Theatre’s Contemporary Retelling of Bluebeard’s Castle Opera 

RDS Canada recently collaborated with Against the Grain Theatre for the production of Bluebeard’s Castle.

Where to Begin – Poetry Installation

A poetry installation exploring what it is like to live with a rare dementia.

RDS Canada National Launch

Rare Dementia Support Canada celebrated its official opening!

RDS Canada Welcomes NOSM University Medical Students  

RDS Canada welcomed medical students from NOSM University for a community learning session.

RDS Canada Faculty Receive CIHR Funding

CIHR has announced a significant grant to support a Nipissing University-led project.