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Providing rare or young onset dementia support across Canada

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Who we are

RDS Canada provides a free specialist Information and support service for people living with, or affected by, a diagnosis of rare or young onset dementia. We are a community of people in similar situations and practitioners providing timely and tailored practical, emotional and social support.

Our focus is:

  • Young onset Alzheimer’s disease
  • Familial Alzheimer’s disease
  • Frontotemporal dementia
  • Familial frontotemporal dementia
  • Progressive primary aphasia
  • Posterior cortical atrophy
  • Lewy body dementia
Virtual meeting

How we can support you

Our support specialists are here to speak with you. Sometimes people just need a bit of information and at other times people may need a listening ear or emotional support by meeting up with others who feel the same.

We also offer information and advice for practitioners who work with people affected by rare or young onset dementia in a variety of settings. Working together is important to respond to a range of support needs, whether someone has just been diagnosed or whether they have been living with dementia for some time.

Welcome, Bonjour, Aaniin! Join our community.

If you need information or support and would like to connect with us, you can:

Find information and support that is right for you

If at any time you feel overwhelmed with the information provided in our website, click here for supportive tools.

News & Updates

Beyond Words

This two-session Peer to Peer Conversation is for family or friends who are supporting someone living with a rare or young onset dementia in the earlier stages of their condition. These sessions are happening on Thursday, March 23 & March 30 from 2:00 – 4:00 pm EST

PCA: What Might Happen Next? 

This two-session Peer to Peer Conversation is for those living in the early stages of a posterior cortical atrophy (PCA) diagnosis and/or family or friends who are supporting someone living with PCA. These session are happening on Monday, February 13 & February 27 from 2:30 – 4:30 pm EST.

Let’s Talk Safety

This two session Peer to Peer Conversation is for family or friends who are supporting someone living with rare or young onset dementia. These conversations are happening on Wednesday, February 22 & March 1 from 11:00 am – 12:30 pm EST

Join us for our National Launch

Rare Dementia Support Canada is celebrating its official opening!

Where to Begin – Poetry Installation at Nipissing University

UPDATE: The poetry installation has been extended to January 31, 2023. Plan a visit to the NUSU student center to view the poetry installation for Alzheimer’s awareness month in January 2023.

Identification Cards: New Resource Available

Printable, diagnosis specific wallet size cards are now available from RDS Canada. 

We want to hear from you…

Your input is important to us! Your opinions and experiences help us to improve our services.