We are committed to awareness raising and advocacy for people affected by rare dementia.
Our commitment to advocacy is reflected in multiple strands of our work, including:
learning through research to better understand the support needs of individuals and families affected by rare dementia
evaluating support to learn how it contributes to improving well-being when living with a rare dementia
awareness raising through our webinars, student education, public education and our social media channels
collaborative networks with other organizations and charities supporting individuals and families who are affected by dementia
disseminating our work through publication and accessible resources
Our Advisory Circle serves as an advocate and ambassador for all those affected by rare dementia in the community. Check our news stories for updates on our work.
