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Multi-Generational Support for Families Affected by Young Onset Dementia
(2023 – 2024)

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Now Recruiting

The overall aim of this study is to explore multi- and/or intergenerational support for people affected by rare and young onset dementia. Our interest is to:

1. Initiate a more detailed understanding of the impact of a rare and young onset dementia diagnosis on youth (aged 12-17), young adults (aged 18-24) and parent (s) of the person living with dementia, including adaptation processes; and

2. Explore modes of direct support that are age or generation specific and/or intergenerational, and responsive to change and support transitions over time.

We anticipate that this study will lead to the development of further research and new tailored support strategies for families affected by rare and young onset dementia.

Our study is funded by a SSHRC(Social Sciences and Humanities Research Council) Institutional Grant.

The investigator team includes Mary Pat Sullivan, Veronika Williams and Jeff Thornborrow, Nipissing University. This study has received ethical approval from the Nipissing University Research Ethics Board. 

If you are interested in participating in this study, please contact us on

Nipissing University