Rare Dementia Support Canada featured at Canadian Association on Gerontology Conference
20-22 October 2022 in Regina
At this year’s CAG conference Dr. Mary Pat Sullivan joined colleagues from the UK to deliver a seminar on developing international collaborations in healthy aging research. Hosted by the UKRI Healthy Ageing Challenge, early career researchers from the UK and Canada gathered to share strategies on building research networks to address global issues on healthy aging.
Dr. Sullivan also presented on the development of RDS Canada and its emerging model informed by the ESRC/NIHR funded Rare Dementia Support Impact Study.
- PPA (Primary Progressive Aphasia) Support GroupThis support group is for people living with a diagnosis of PPA along with their main supporter, who may be a family member or friend. The PPA 4 Week Welcome Group helps members build connection, learn and share practical strategies for living better, living well as family or friend supporting someone with a diagnosis of Primary Progressive Aphasia. The Welcome Group is offered as a first stage group where members are then invited to participate in an ongoing monthly PPA support group after these first four weeks. These sessions are happening on Mondays, July 10th, July 17th, July 24th, July 31st from 1 pm - 2:30 pm EST.
- Living with Dementia in the Later StagesThis group aims to provide practical information, education and emotional support for families impacted by a rare or young onset dementia during the late stages of the disease. Sessions will cover a range of topics with practical advice, provide a safe space for participating members to share experiences and include educational information. The sessions will start on September 14, 2023 (12 pm - 2 pm EST) and will run for seven weeks ending on October 26, 2023.
- FTD (Frontotemporal Dementia) Support GroupThis support group is for family or friends/caregivers to someone with a Frontotemporal (FTD) diagnosis. The Welcome Group is offered as a first stage group where members are then invited to participate in an ongoing monthly FTD support group after these first four weeks. These sessions are happening on Mondays, May 29th, June 5th, 12th, 19th from 1 pm - 2:30 pm EST.