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RDS Canada News

Sip & Sonder: Connections with Self, Family, Community and the Natural Environment

Sip & Sonder: Connections with Self, Family, Community and the Natural Environment

Thank you to all who gathered at the North Bay museum on November 1st and 2nd to explore our installation of stories of connection and living with dementia. The event included welcome and refreshments, open gallery & Imagine and Create Your Own Maps.
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Support Group for Familial Alzheimer’s Disease

Support Group for Familial Alzheimer’s Disease

In partnership with Rare Dementia Support (UK) and Youngtimers (USA), Rare Dementia Support Canada hosted a joint support group to bring together individuals from the US, Canada, and the UK (and beyond) impacted by autosomal dominantly inherited familial Alzheimer's disease (sometimes referred to as ADAD, DIAD or FAD).   We are pleased to announce that the 90 minute group support session ran on Sunday, November 19th and included an international group of participants.  For more information please email rdscanada@nipissingu.ca.
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Talking Lines creative research update 

Talking Lines creative research update 

Talking Lines is a research project which combines both visual and verbal modes of communication, taking the concept of the drawn line as a starting point to promote communication and narrative construction.  Talking Lines invited 27 people living with or caring for someone with a rare dementia to draw and talk about their experiences; reflecting on deeply challenging situations such as maintaining identity in the face of a diagnosis, the realities of care, and wider social and cultural narratives about dementia. There will be a presentation of this research at the Drawing Room Library, London (UK), which will focus on the drawings and words of 4 participants who took part in the research, including Canadian participation.
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Survey

We want to hear from you…

Your input is important to us! Your opinions and experiences help us to improve our services.
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RDS - Rare Dementia Support Canada - Advice, Community, Learning

Our National Launch

Rare Dementia Support Canada celebrated its official opening!
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There is so much I could say: Poems from the Rare Dementia Support Research Project

Where to Begin – Poetry Installation at Nipissing University

A poetry installation exploring what it is like to live with a rarer dementia
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Conference photo

Rare Dementia Support Canada featured at Canadian Association on Gerontology Conference

20-22 October 2022 in Regina
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  • Sip & Sonder: Connections with Self, Family, Community and the Natural Environment
    Thank you to all who gathered at the North Bay museum on November 1st and 2nd to explore our installation of stories of connection and living with dementia. The event included welcome and refreshments, open gallery & Imagine and Create Your Own Maps.
  • Support Group for Familial Alzheimer’s Disease
    In partnership with Rare Dementia Support (UK) and Youngtimers (USA), Rare Dementia Support Canada hosted a joint support group to bring together individuals from the US, Canada, and the UK (and beyond) impacted by autosomal dominantly inherited familial Alzheimer's disease (sometimes referred to as ADAD, DIAD or FAD).   We are pleased to announce that the 90 minute group support session ran on Sunday, November 19th and included an international group of participants.  For more information please email rdscanada@nipissingu.ca.
  • Talking Lines creative research update 
    Talking Lines is a research project which combines both visual and verbal modes of communication, taking the concept of the drawn line as a starting point to promote communication and narrative construction.  Talking Lines invited 27 people living with or caring for someone with a rare dementia to draw and talk about their experiences; reflecting on deeply challenging situations such as maintaining identity in the face of a diagnosis, the realities of care, and wider social and cultural narratives about dementia. There will be a presentation of this research at the Drawing Room Library, London (UK), which will focus on the drawings and words of 4 participants who took part in the research, including Canadian participation.